CRME employees, who serve people with neuromuscular diseases, have developed the clinical expertise and strategies that enable them to conduct rigorous evaluations on the deterioration of the child’s neuromuscular condition; to establish a reliable prognosis for social participation and to measure its impact on the child’s activities of daily living. The team determines best practices based on client profile, critical stages of the disease and environment.
The team provides a fuller interpretation of standard test results in light of known clinical manifestations, and highlights the differences and subtleties that only their work with a sufficient volume of users can bring.
Their advanced knowledge about neuromuscular diseases also enables them to draw parallels with other similar disorders and to make sense of unusual symptoms. Some decisions pertaining to neuromuscular diseases can have short, medium and long-term impacts on the child’s life that are likely to bring about permanent after-effects.
It is therefore important to anticipate the possible consequences and complications that may occur during interventions and non-interventions. Determining the timeframe for interventions is also a crucial element in its outcome.
Employees at the CRME’s Neuromuscular Diseases Clinic are committed to maintaining a close relationship with regional rehabilitation centres in order to achieve a common interventional philosophy and to enhance the continuum of service delivery to users. Therefore, frequent meetings take place between the CRME and regional rehabilitation centres.
N.I. A.V. (Non-invasive assisted ventilation) - Pamphlet (Word Document)