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Objectives - Neuromuscular Diseases

Providing ultra-specialized services is part of an on-going process with the regional rehabilitation centre and aims to:

  • Help children and their families adjust to the degenerative aspects of neuromuscular diseases
    • Rehabilitation workers of the CRME have developed the expertise and knowledge about the degenerative profile and prognosis of clients living with neuromuscular diseases. This enables them to prioritize certain strategies and to make recommendations based on all factors.
    • The CRME’s multidisciplinary team guides the child and family in the appropriation process with regard to the diagnosis and consequences as soon as the disease is confirmed and the child is registered with the Clinic.
    • Both the child and family are provided with support during critical stages as they cope with the repercussions of the child’s deteriorating condition. Interventions are recommended based on each child’s profile and personal situation, taking into account their individual diagnosis, progression, prognosis, environment and state of health.

      CRME rehabilitation professionals work in close collaboration with regional rehabilitation centres and support their fellow rehabilitation colleagues as they assist both the child and family in the adjustment process. The regional rehabilitation centre communicates information about the child’s daily life to the CRME.
  • Enhance both the child’s and family’s participation in their daily activities and social roles throughout the rehabilitation process
    • The CRME’s ultra-specialized team makes recommendations based on recognized field practices and on the disorder and its known deteriorating effects in order to safely maximize the child’s physical and functional potential and to enable the family to support the child.

      CRME rehabilitation professionals work in close collaboration with regional rehabilitation centres and support their fellow rehabilitation colleagues as they assist both the child and family in the adjustment process. The CRME informs the regional rehabilitation centre about the best strategies in the field of neuromuscular diseases and also provide support in terms of monitoring the child’s prognosis. Regional rehabilitation centres are responsible for implementing the recommended approaches in the child’s intervention plan and for ensuring the necessary means for his/her social participation.
  • Contribute to the continuum of service delivery in collaboration with the partners
    • CRME employees, working in the Neuromuscular Diseases Program, contribute to the continuum of service delivery while the regional rehabilitation centre is responsible for ensuring the continuity of services.
  • Foster the development, transfer and acquisition of knowledge and skills regarding this clientele
    • CRME employees, working in the Neuromuscular Diseases Program, record client profiles; participate in a number of research initiatives as well as promote and diffuse their findings. 
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Updated on 3/20/2015
Created on 1/15/2015
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The Fonds Mélio de la Fondation CHU Sainte-Justine – formerly the Fondation Mélio – is an essential pillar of support for the centre of excellence in musculoskeletal disorders and in rehabilitation medicine. It is dedicated to providing ongoing and indispensable support for the 5,000 children with locomotor or speech impairments being cared for at the Marie Enfant Rehabilitation Centre (CRME).

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